Dementia A Message of Hope

Author

Cappella of Grand Junction

For more information about the author, click to view their website: Cappella of Grand Junction

Posted on

Mar 08, 2023

Book/Edition

Colorado - Western Slope

“Dementia doesn’t rob someone of their dignity, it’s our reaction to them that does.” – Teepa Snow

Like most people in the field of senior living, I’ve learned everything I know about dementia from other professionals and service providers. I recently attended a session at the LeadingAge PEAK conference that completely shifted my paradigms.

This session was different. It was taught by a different type of expert – a panel of individuals who have a diagnosis of, and are living with, dementia. It included advisory board members of the Dementia Action Alliance, an advocacy and education organization of people living with dementia, care partners, friends and dementia specialists.

Rather than speaking of decline and deficits and despair, these panelists spoke of hope and possibility. They shared a new paradigm in which people don’t just exist with dementia but truly live and craft new hopes and dreams for the future. They shared stories of the gifts that come with a dementia diagnosis such as heightened spirituality, closer connections to people and to nature, and a deeper enjoyment of life.

The panelists also shared stories of the devastating and dangerous impact of the stigma that surrounds dementia. From the moment a diagnosis is received, and a doctor says, “I’m sorry… go home and get your affairs in order,” our current framework is focused only the losses that come with dementia – an approach that serves to marginalize and ostracize those who are living with dementia and their families.

By fighting back against the stigma and shame that surrounds dementia, the panelists believe that we can reduce fear. And, with this new approach, people will be more likely to get an early diagnosis rather than hide their symptoms. This puts the person in the driver’s seat – in control of his or her own future. Rather than dreading the future and isolating him or herself, an individual can choose how to live life from that moment of diagnosis forward. He or she can learn to use technology like Amazon Alexa or a smartwatch to retain independence and plan what should happen when living independently is no longer an option. It’s time that the voices of those living with dementia are heard – we have much to learn.


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Here are some factors that can determine the appropriate time to initiate this conversation:         Start the conversation early, using the 40-70 rule, so you have time to make or change plans based on your parents' needs         Create a comfortable and open environment for the conversation         Plan more than one conversation so you can cover all possible issues         Take notes so you remember what was discussed and can keep track of next steps         Keep a list of all their passwords for accounts such as computer, email, phone, and cable Create a Caregiving Plan A caregiving plan will ensure everyone is on the same page about the care needed and how it will be handled as your parents age. If they require additional care, consider how you can support their needs. 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Go over everything together and meet with their estate planner so you can ask questions about their wishes and how to ensure they are carried out.         Discuss important documents and where they are stored         Find out if your parents have a will and a living will, and where they are located         Make sure their POA for finances and healthcare proxies are in order         Read through their estate plan/will to make sure beneficiaries and responsibilities are correct and up to date Review Insurance PlansRegularly review your parents insurance policies. Its essential to know if their policies are adequate, up to date, and where the accounts are located. This information can help avoid undue financial burdens during medical emergencies or accidents.          Make a list of active insurance policies such as auto, home, health, long-term care, etc.         Review homeowners, auto, and life insurance policies to ensure they are adequate and up to date         Review health insurance coverage for any policy changes that need to be made based on current or future needs  Aging Parents Checklist Although caring for an aging parent often means taking on financial, legal, and other responsibilities, it can also be a time to reflect on happy memories and plan for a future that includes more joyful moments. 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Northwoods Memory Care Suites Providing Compassionate Memory Care

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Local Services By This Author

Cappella of Grand Junction

Memory Care 628 26 1/2 Road, Grand Junction, Colorado, 81506

At Cappella of Grand Junction, we carefully designed our Memory Support neighborhood to assist those living with Alzheimer's and dementia in a way that fosters individuality, dignity, a sense of value, and personal growth.  Honoring the person as an individual is our mission and focus.  We provide an environment where residents thrive, and families have peace of mind.  

Cappella of Grand Junction

Assisted Living 628 26 1/2 Road, Grand Junction, Colorado, 81506

At Cappella of Grand Junction our assisted living community offers the support to enable each person to live their life to the fullest. With just the right amount of assistance, residents can enjoy their day independently and in harmony with others, free from the chores and cares of household maintenance. Our lovely and lively community boasts 40 spacious studio, one-bedroom and two-bedroom apartment homes, plus a wealth of inviting common spaces, including a full-service salon, Grab and Go Bistro, Luxurious Spa and a wellness and therapy center.  Honoring Each Individual, Enriching Each Day at Cappella