Living with or Caring for Someone with Chronic Illness

Author

Agape Healthcare - Hospice & Palliative Care

For more information about the author, click to view their website: AGAPE Healthcare

Posted on

Sep 16, 2012

Book/Edition

Colorado - Denver Metro , Colorado - Denver North Metro , Colorado - Denver South Metro

Living with long-term illness can take a toll on individuals and their families. Treatment for cancer, heart disease or any number of conditions can be accompanied by distressing symptoms, robbing people of their quality of life. Caregivers having to manage appointments, ongoing symptoms, medication, and daily care often find themselves stressed and depleted.
That's where palliative care can help. Palliative (pal-lee-uh-tiv) medicine helps patients and families navigate all facets of living with illness, from managing pain and distressing symptoms to providing practical, emotional and spiritual support.

For many, palliative care is a mystery, or its automatically associated with hospice. Palliative medicine is a part of hospice end-of-life care, but is a distinct specialty for anyone undergoing treatment for chronic or serious illness.
Unveiling the Mystery of Palliative Care

How does it work? When a family accesses palliative care, they gain a team of dedicated specialists: a physician, nurse practitioner, social worker and chaplain who create a care plan tailored to patient and family wishes and needs. Your palliative care team works with your current providers to ensure seamless care.

What illnesses can benefit from palliative intervention? Cancer, heart disease, lung disease, kidney failure, AIDS, cystic fibrosis, MS and ALS.

What symptoms can palliative care address? Pain, nausea, loss of appetite, fatigue, insomnia, depression, anxiety, and shortness of breath, and more.

Who pays for it? Medicare Part B, Medicaid and most private insurance covers most or all services.

When should I access care? As soon as the first day of diagnosis of a chronic or life-limiting illness or anywhere along the road of treatment.

Where is it provided? Wherever a person calls home.

How can I receive it? Talk to your physician, or call a provider directly.

The wife of a palliative patient said it best: Oncologists treat cancer, cardiologists the heart. But what happens to the rest of you? Palliative care can be the facilitator for all to work together for the common good of the whole person.

Editors Note: This article was submitted by Kelly Bastian, RN, FNP-C, Managing Director at Agape Healthcare, Hospice & Palliative Services. Kelly may be reached at 720-482-1988 or by email kbastian@agape-healthcare.com

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Comparing Palliative & Hospice Care - Understanding Palliative Care Compared to Hospice Care

Comparing Palliative & Hospice Care Understanding Palliative Care Compared to Hospice CareSome older adults and people with serious illnesses, unfortunately, experience the end of life in certain healthcare settings that do not align with their desired wishes. If you have a serious illness or are a caregiver of someone planning end-of-life care, knowing the difference between palliative care and hospice care can help you make an informed decision when the time comes to transition to one of these healthcare settings.What Is Palliative Care?Palliative care is a form of care that focuses on improving your quality of life and that of your family when you are living with a serious illness. It focuses on your whole-person health rather than only on your condition. If you are receiving palliative care, your treatment plan may focus on reducing symptoms of your illness and on improving secondary conditions such as depression, sleep deprivation, and side effects of medications.Palliative care may be given in various healthcare settings, such as at the hospital, a residential care facility, or your home. Anyone can receive this type of care regardless of age or the severity of their condition.If you receive palliative care, you may work with and be treated by various healthcare professionals, including doctors, nurses, social workers, pharmacists, physical therapists, counselors, and nutritionists. If you need spiritual care, your palliative care team may even include a chaplain. The healthcare professionals that make up your palliative care team will depend mainly on your recovery needs and level of care.Studies show that palliative care offers many benefits, including:Reduction in pain, nausea, and shortness of breathImproved communication among patients, their loved ones, and their healthcare providersIncreased emotional supportHigh-quality care that aligns with the patients wishesReduction in stressIncreased confidence surrounding decision-making related to careAbility to meet the emotional and spiritual needs of the patients and their loved ones What Is Hospice Care? Hospice care focuses on improving your comfort and quality of life when you are nearing the end of your life. This type of care is usually given in circumstances in which an illness continues to progress despite treatment or when the patient chooses not to receive certain treatments. Hospice care is similar to palliative care in that it provides comfort care and support for the family. However, treatments are not given to improve the illness. Like palliative care, hospice care can be given in many different healthcare settings, though it is most frequently given at your home, where you can be most comfortable and spend quality time with your loved ones. In addition, it is typically given when your healthcare provider believes you have no more than six months to live. Some benefits of hospice care include 24/7 access to nurses and healthcare workers who can address and relieve symptoms and side effects and access to medical equipment and medications that can reduce your discomfort. Many of the same types of healthcare professionals that make up a palliative care team will also be part of your hospice care team. This includes doctors, nurses, social workers, chaplains, and volunteers who dedicate their time to giving you the support you need and making you feel as comfortable as possible during your final months. To be eligible for hospice care, you will discontinue aggressive treatment efforts to combat your terminal illness (such as experimental surgeries, aggressive chemotherapy, or other treatments that require prolonged hospitalization and recovery).   However, you may continue to receive treatments for other conditions, such as antidepressants to treat depression or insulin medicines to control Diabetes.    What Is Comfort Care and End-of-Life Care? Comfort care and end-of-life care are both terms that describe the type of care you receive when you are near the end of your life and are no longer receiving treatment for your illness. It is highly similar to palliative care in providing you with whole-person care that focuses on your physical, social, emotional, and spiritual health. Comfort care and end-of-life care may include palliative care or hospice care, or a combination of both. What Are the Main Differences Between Palliative Care and Hospice Care? Sometimes, palliative care is given as part of hospice care, and both types share many similarities. For instance, the goal of both palliative and hospice care is to improve your quality of life and help you find relief from painful and severe symptoms and side effects of treatment. Both types of care also focus on whole-person health. However, there remain many differences between palliative care and hospice care. Some of these differences are: Palliative care can be given to anyone with a serious illness, regardless of the stage of their disease. In comparison, hospice care is typically only given when a person has less than six months to live and is at the end of their life. Palliative care can be given simultaneously when the patient receives other treatments for their condition, such as chemotherapy or radiation therapy. Hospice care is usually given when treatment for the illness has stopped, and the goal of care is to manage the patients symptoms for the remainder of life. The healthcare professionals on a palliative care team work separately from the patients primary care team that is treating the illness. In comparison, the healthcare professionals on a hospice care team handle the majority of the care and collaborate with the patients primary care team as necessary.  Who Should Consider Palliative Care? You may want to consider palliative care if you or your loved one has a serious illness or chronic condition that requires long, intensive care or that causes severe physical symptoms and/or emotional distress. For example, cancer, heart disease, AIDS, and kidney failure are some of the many conditions that can benefit from palliative care. Additionally, palliative care may benefit you if you: Want relief from severe physical pain you are experiencing due to your illness Are experiencing emotional pain or psychological conditions that you are unable to control Want to continue to receive treatment for your condition Want tips and guidance on how to effectively manage your condition Need guidance with choosing the best treatment Need help understanding your illness Want to receive treatment at home or outside of a traditional hospital setting Have loved ones who are involved with your treatment Need help transitioning from one treatment setting to another When Would Someone Transition From Palliative Care To Hospice Care? A person may transition from palliative care to hospice care if their doctor thinks they have no longer than six months to live. Sometimes, it can be difficult for doctors to predict exactly how long it will take for a particular disease to run its course or how long a person has left to live if their health is in decline. In these circumstances, its important to consider how transitioning to hospice care could improve your quality of life during your final months. According to the National Library of Medicine (NLM), doctors should strongly consider referring chronically ill patients to hospice care if they spend more than half their time in bed, are unable to function efficiently, and are experiencing both physical and psychological distress. The NLM adds that hospice referrals are usually necessary when the patients condition has progressively declined to the point that their highest priority is to take control of their healthcare and achieve the greatest possible comfort in their homes as they near the end of life. Talk to your doctor if you think you may need hospice care but arent sure when you should transition out of palliative care. Your doctor can talk to you at length about your options and the benefits of transitioning to hospice care based on your condition and unique circumstances. Taking advantage of hospice care as soon as its needed could result in access to quality care and lots of extra quality time to spend with your loved ones. Additionally, studies show that patients who plan their care in advance are more likely to be satisfied with their care, given how they can make decisions that align with their end-of-life wishes. How to Get Palliative Care or Hospice Care Consult with your healthcare provider if you or your loved one is interested in learning more about palliative care or hospice care. Your doctor can refer you to a palliative or hospice care specialist who can answer all your questions and help you determine which of these services may be more ideal. Palliative care and hospice care are covered by many major health insurance providers, including Medicare. The exact benefits covered will vary based on your health plan. Benefits covered may include medical equipment and supplies, skilled nursing care, bereavement support, and medications to provide comfort, among many others. Hospice At Your Side has resources for home health and hospice services throughout the United States. Specialty services we offer include diabetes care, orthopedics, and pain management. Call us today to learn more about our many home healthcare services.

Skilled Nursing: Providing Essential Care and Expertise

Skilled nursing, often referred to as nursing care, is a crucial component of the healthcare system that caters to individuals who require advanced medical attention and assistance due to various health conditions. This specialized form of care is typically provided by licensed and trained nurses, including registered nurses (RNs) and licensed practical nurses (LPNs), who possess the expertise to administer complex medical treatments, manage chronic illnesses, and ensure the overall well-being of patients.The Role of Skilled Nursing:Skilled nursing goes beyond the basic care provided by caregivers or certified nursing assistants (CNAs). It involves a higher level of medical expertise and involves tasks that demand clinical judgment and knowledge. Skilled nursing services are often required for individuals who are recovering from surgery, managing chronic diseases, or dealing with acute medical conditions that demand close monitoring and specialized interventions.Key Responsibilities of Skilled Nurses:1.Medication Administration: Skilled nurses are responsible for administering medications, including intravenous medications, injections, and oral medications, while closely monitoring their effects and potential side effects.2.Wound Care: Skilled nurses excel in wound management, particularly for complex wounds that require specialized dressing changes, infection control, and monitoring for signs of complications.3.Medical Assessments: These nurses perform comprehensive medical assessments, which involve monitoring vital signs, evaluating symptoms, and recognizing any changes in the patient's condition. This helps in identifying potential issues early and implementing appropriate interventions.4.Ventilator and Respiratory Care: Skilled nursing is essential for patients who require assistance with ventilators or other respiratory support systems. These nurses ensure proper functioning of equipment, airway management, and patient comfort.5.Rehabilitation: Patients recovering from surgery, injury, or illness often require rehabilitation services. Skilled nurses coordinate with therapists and physicians to develop and implement personalized rehabilitation plans.6.Pain Management: Managing pain effectively is crucial for patients with acute or chronic conditions. Skilled nurses assess pain levels, administer pain medications, and monitor the patient's response.7.Disease Management: Patients with chronic illnesses such as diabetes, heart disease, and kidney disease benefit from skilled nursing to manage their conditions. Nurses educate patients about their illnesses, provide guidance on medication management, and monitor their overall health.Settings for Skilled Nursing:Skilled nursing services are provided in various settings, including:1.Hospitals: Skilled nurses play a critical role in hospital settings, assisting with post-surgery care, wound management, and patient education.2.Long-Term Care Facilities: Nursing homes and assisted living facilities employ skilled nurses to provide ongoing care for residents with complex medical needs.3.Home Healthcare: Skilled nursing can be delivered in the patient's home, allowing individuals to receive medical care while remaining in a familiar environment.4.Rehabilitation Centers: Patients undergoing rehabilitation for injuries, surgeries, or illnesses receive skilled nursing as part of their comprehensive treatment plan.Conclusion:Skilled nursing is an indispensable aspect of healthcare that combines medical expertise with compassionate care. Skilled nurses play a pivotal role in ensuring that patients receive the necessary medical treatments, monitoring, and support they need to recover from illnesses, manage chronic conditions, and lead healthier lives. Their commitment to delivering high-quality care contributes significantly to the well-being of individuals across various healthcare settings.

Choose the Care thats Right for You

Understand your healthcare options. This makes all the difference when it comes to selecting the provider thats a match for you. As you face serious and/or life-limiting illnesses, palliative and hospice care enhance your existing medical care. They work in tandem with your current doctors and treatments. Palliative CareIf you have been diagnosed with a complex or terminal illness, palliative care can improve your quality of life by managing pain through additional visits from registered nurses. Your palliative care nurse works with your physicians and specialists. In addition, palliative care supports patients and families through the stress of living with an illness and can help improve their overall quality of life. Hospice CareHospice care isnt just for cancer patients or seniors. It provides emotional, spiritual, and physical comfort to anyone with a life-limiting illness. Wherever a patient calls home, hospice care comes to you. Hospice caregivers also deliver medications, medical equipment, and supplies. Additional ServicesWhen you think of healthcare, you rarely consider the extra help you may need to get through your day. Volunteer, chaplain, and bereavement services go above and beyond normal service offerings. In finding the care provider thats right for you, be sure to ask about all of their services and compare multiple providers. Covered ExpensesMedicare or Medicaid cover almost all palliative and hospice expenses, while private insurance picks up the rest. If your condition improves, you can transfer from hospice to palliative care. Selecting a Healthcare ProviderSelecting healthcare services can feel daunting. Remember, you are more than a patient. You are a person. You deserve to be treated with dignity and respect at every stage in your life. Before you decide on a care provider, meet with the staff to make sure theyre a good fit for you. If at any point, you arent happy or comfortable with your care, let the company know. Youand your healthcarematter. *****Editors Note: This article was submitted by Larry Woods, CEO of Agape Healthcare. For more information, call 720.482.1988 or email info@agape-healthcare.com. See ad on the inside front cover.

Local Services By This Author

Agape Healthcare - Hospice & Palliative Care

Hospice 6041 South Syracuse Way, Greenwood Village, Colorado, 80111

Agape Healthcare has provided compassionate care to our Denver Front Range community for 20 years. Our experienced teams help individuals and their families navigate the course of illness through specialized care, support and symptom management, all in a spirit of unconditional love.People nearing the end of life often experience emotional and spiritual distress. Some find it difficult to reach out to the people in their lives. Family may feel the same, not knowing how to communicate or move forward. Agape social workers, chaplains and volunteers may support patients and families through counseling, practical help and spiritual support.Our goal is helping patients feel better so they can live better each day, and supporting family through the journey.